Adrienne Asch Wellesley College 106 Central St. Wellesley MA 02181-8295 Phone: (617) 283-3248 Fax: (617) 283-3671 E-mail: aasch@lucy.wellesley.edu Ph.D. in Social Psychology, Columbia; now Henry R. Luce Professor in Biology, Ethics and the Politics of Human Reproduction, Wellesley College; formerly Associate in Social Science Policy, New Jersey Bioethics Commission; publications on ethical issues in genetics, reproductive technology, abortion, and disability; member, Hillary Rodham Clinton Health Care Task Force, Bioethics Working Group. Available for: ALL 10 CATEGORIES See articles in bibliography
Linda K. Ashworth Biology and Biotechnology Research Program Lawrence Livermore National Laboratory P.O. Box 808 L-452, Livermore CA 94551 Phone: (510) 422-5665 Fax: (510) 422-2282 E-mail: linda@snrp.llnl.gov Clinical Lab Specialist in Cytogenetics; Assistant Genome Center Director, Lawrence Livermore National Laboratory; research on physical mapping and sequencing of human chromosome 19; involved in Human Genome Project since "before its inception"; currently working with a large interdisciplinary group on tools and techniques to automate mapping and DNA sequencing; responsible for WWW pages presenting these data. Available for: ALL 10 CATEGORIES
Diane L. Baker Univ. Michigan Medical Center Dept. Pediatric Genetics, M4708 Med Sci II Ann Arbor, MI 48109-0618 Phone: (313) 763-2933 Fax: (313) 763-3784 E-mail: bakerdl@umich.edu M.S. in Genetic Counseling, Sarah Lawrence College; Director of the graduate program in Genetic Counseling and the Genome education Outreach Program within the University of Michigan Department of Human Genetics; Past President (1987-88), National Society of Genetic Counselors; member (1995-98), Board of Directors, American Society of Human Genetics. Available for: ALL 10 CATEGORIES
Carol Isaacson Barash Principal Genetics, Ethics & Policy Consulting 317 Lamartine Street, #2 Boston, MA 02130 Telephone: (617) 522-0845 Fax: (617) 983-5465 email: cbarash@tiac.net Ph.D. in Philosophy; now founder and principal of Genetics, Ethics & Policy Consulting which provides educational product development and testing, research on barriers to effective education of health care providers, ethics and content consultation, policy analysis and evaluation; publications and invited lectures on ethical, educational and policy issues in genetics. Available for: ALL 10 CATEGORIES
Bonnie Baty Dept. of Pediatrics Univ. of Utah Health Sciences Center Salt Lake City UT 84112 Phone: (801) 581-6914 Fax: (801) 585-5241 E-mail: bonnie.baty@hsc.utah.edu M.S. in Genetic Counseling, Rutgers University; Genetic Counselor, Univ. of Utah; American Board of Genetic Counseling; Mountain States Regional Genetics Services Network; Jane Engleberg Memorial Fellowship Board of Directors; BRCA1 Counseling and Information Project; HD Predictive Testing Project; National Society of Genetic Counselors Social Issues Committee; articles, book chapters on genetic conditions and genetic counseling. Available for: ALL 10 CATEGORIES Special Expertise: Genetic counseling, predictive testing, cancer risk counseling, hemophilia, Huntington's disease, trisomies 18 and 13, and education.
Janet Bernault 44 Gartland Street Jamaica Plain MA 02130 Phone: (617) 524-1890 Fax: (617) 522-1984 E-mail: M.A. in Library Science, University of Michigan; editor, WILDA (Women in Leadership/Disability Activists); self-employed accountant/manager, workshop organizer/leader and teacher. Available for: ALL 10 CATEGORIES
Paula K. Berry Genetrix, Inc. 1255 Harbor Bay Parkway #101 Alameda CA 94502 Phone: (800) 627-4363 Fax: (510) 748-6419 E-mail: drpkb@aol.com Ph.D. in Genetics, Howard University; Laboratory Director, Genetrix, Inc., Alameda, CA; 27 years experience in cytogenetics; papers published in Science, International Journal of Cancer, American Journal of Hematology. Available for: ALL 10 CATEGORIES
Melissa Cefkin 64 Bow Street #C Somerville MA 02143 Phone: (617) 629-0905 Fax: E-mail: melissa_cefkin@irl.org Ph.D. in Anthropology, Rice University; now Research Scientist, Institute for Research on Learning; ethnographic research in corporate workplaces, with foci on changing institutional formations (including workplace democratization efforts), participatory design and implementation of new programs, and workplace technologies. Available for: ALL 10 CATEGORIES
Jacqueline Ann Clipsham P.O. Box 387 Califon NJ 07830 Phone: (908) 832-2473 Fax: (908) 832-2473 E-mail: jaclipsham@aol.com M.A., Art Studio, Cleveland Institute of Art; exhibits ceramics, sculpture, & artist's books; publishes in Women's Caucus for Art National Update, Studio Potter, Disability Rag; 1991 Guest Lecturer, British Arts Council; consultant, National Endowment for the Arts; Board of Directors, Women's Caucus for Art & Resources for Artists with Disabilities. Available for: ALL 10 CATEGORIES
Marjorie H. Davis 30 Barn Door Hills Road Granby CT 06035 Phone: (203) 653-3304 Fax: E-mail: rmhdavis@aol.com M.S. in Neurology, Cornell; M.Div., Yale; now Adjunct Staff, Pastoral Counseling Center, West Hartford, CT; member, United Church of Christ Working Group on Science and Technology; past president, Institute on Religion in an Age of Science; research, case writing on ethical decisions in science and technology; special interest in the psychological development of women. Available for: ALL 10 CATEGORIES
Luba Djurdjinovic 124 Front Street Binghamton NY 13905 Phone: (607) 724-4308 Fax: (607) 724-8290 E-mail: luba@spectra.net M.S. in Genetic Counseling; Program Director of the Genetic Counseling Program in Binghamton, New York; Instructor at the School of Social Work, Syracuse University; Past President of the National Society of Genetic Counselors. Available for: ALL 10 CATEGORIES
Anne Donchin
Philosophy Dept., Indiana University
425 University Blvd.
Indianapolis IN 46202
Phone: (317) 274-8926
Fax: (317) 274-2347
E-mail: adonchin@iupui.edu
Ph.D. in Philosophy; now Associate Professor, Philosophy
and Women's Studies, Indiana University/Purdue University
at Indianapolis; research on feminist theory and
ethical/social issues in biomedicine; forthcoming book, Procreative
Powers: Women and the New Reproductive Technologies.
Available for: ALL 10 CATEGORIES
Special Interests: Moral issues in medicine.
Annette Dula 822 Fred Road Boulder CO 80302 Phone: (303) 440-7056 Fax: (303) 440-5277 E-mail: dula@spot.colorado.edu Ed.D. Harvard University (Philosophy of Education); now Senior Research Associate, Center for the Study of Ethnicity and Race in America, University of Colorado, Boulder; editor, It Just Ain't Fair! The Ethics of Health Care for African Americans (Praeger/Greenwood); special interest in health of underserved populations and health care access. Available for: ALL 10 CATEGORIES
Francine B. Essien Director, Office of Minority Undergraduate Science Programs (OMUSP) Nelson Biological Laboratories Rutgers, The State University of New Jersey 604 Allison Road, Room A101 Piscataway, NJ. 08854-8000 Phone: (732) 445-6878 Fax: (732) 445-6879 E-mail: essien@biology.rutgers.edu Ph.D. in Genetics, Albert Einstein College of Medicine; now Professor, Rutgers University, teaching courses related to genetics; research on the genetics of birth defects, including spina bifida; as Fulbright Scholar taught genetics (Nigeria); now Director, Office of Minority Undergraduate Science Programs (Rutgers); 1994-95 Carnegie Foundation Professor of the Year. Available for: ALL 10 CATEGORIES
Nancy L. Fisher Medical Genetic Services 4020 E. Madison Street, Suite 327 Seattle WA 98112 Phone: (206) 329-5540 Fax: (206) 329-3171 E-mail: M.D., Baylor; MPH, University of Washington; now Director, Medical Genetic Services, Seattle; Clinical Associate Professor, Pediatrics, University of Washington; board certified, clinical genetics; interests in ethics and cultural issues in genetic counseling. Available for: ALL 10 CATEGORIES
Gertrude Fraser Dept of Anthropology, Brooks Hall University of Virginia Charlotteville VA 22903 Phone: (804) 589-3082 Fax: E-mail: gjf2v@virginia.edu Ph.D. in Anthropology, The John Hopkins University; now Assistant Professor at the University of Virginia; research on reproductive health care, midwifery in the American South; also a faculty member of the University of Virginia ELSI project with an interest in African American communities' attitudes towards HGP research. Available for: ALL 10 CATEGORIES
Karen F. Frasier-Scott Box 306 Biology Univ. of Houston - Clear Lake Houston TX 77058 Phone: (713) 283-3744 Fax: (713) 283-3707 E-mail: frasierscott@uhcl4.cl.uh.edu Ph.D. in Molecular Biology, University of Arizona; Program Chair and Associate Professor of Biology, University of Houston-Clear Lake; research in regulation of angiotensin converting enzyme, a protein important in blood pressure control; teach molecular biology, gene therapy, bio-medical ethics, biology of AIDS, oncogenes and other biomedically related classes at the graduate and undergraduate level. Available for: ALL 10 CATEGORIES
Elena Gates Dept. of Obstetrics & Gynecology UCSF, Box 0132 San Francisco CA 94143-0132 Phone: (415) 476-3815 Fax: (415) 476-1811 E-mail: elena_gates@quickmail.ucsf.edu M.D., University of California, San Diego; now Associate Professor, Obstetrics and Gynecology and Division of Medical Ethics, University of California San Francisco; research on pregnant women's decision-making in prenatal genetic testing. Available for: ALL 10 CATEGORIES See article in bibliography
Gail Geller Genetics & Public Policy Studies, JHU 550 N. Broadway, Suite 511 Baltimore MD 21205 Phone: (410) 955-7894 Fax: (410) 955-0241 E-mail: ggeller@welchlink.welch.jhu.edu Sc.D. in Bioethics/Behavioral Sciences; now Associate Professor, Johns Hopkins Medical Institutions; research on the ethical and social implications of genetic testing; co-author, "Feminism, bioethics & genetics" in S. Wolf, ed, Feminism and Bioethics: Beyond Reproduction (Oxford); co-editor, AIDS, Women and the Next Generation: Towards a Morally Acceptable Public Policy for HIV Testing of Pregnant Women and Newborns (Oxford). Available for: ALL 10 CATEGORIES See article in bibliography
Karen R. Grant Dean's Office, Faculty of Arts University of Manitoba Winnipeg MB R3T 5V5, CANADA Phone: (204) 474-9912 Fax: (204) 275-5781 E-mail: kgrant@cc.umanitoba.ca Ph.D. in Medical Sociology, Boston University; now Associate Professor, Sociology, and Associate Dean (Research), Faculty of Arts, University of Manitoba; research interests in women's health, feminist sociology; prepared report for the Canadian Royal Commission on New Reproductive Technologies, "Prenatal Diagnosis: A Study of Women's Attitudes, Perceptions and Experiences." Available for: ALL 10 CATEGORIES
Jalna Hanmer Postgraduate Women's Studies University of Bradford Bradford BD7 1DP UK Phone: 44-1274-383529 Fax: 44-1274-385370 E-mail: jhanmer@bradford.ac.uk Professor of Women's Studies, Univ. of Bradford England; research on impact of scientific and technological developments in human reproduction, pharmaceutical firm's marketing of genetically manipulated products; managing editor, 1988-1992, Issues in Reproductive and Genetic Engineering; Journal of International Feminist Analysis; co-director, grant from European Union on women's perspectives on human genome analysis. Available for: ALL 10 CATEGORIES
Shakura Haqque 103 Milbank Hall Tuskegee University Tuskegee, AL 36088 Phone: (334) 727-7927 Fax: (334) 727-8552 E-mail: Haqque55@Acd.Tusk.edu Senior biological science student at Tuskagee University, research on gene mapping, student activities coordinator of Human Genome Conference at Tuskagee University. Available for: ALL 10 CATEGORIES Special Expertise: gene mapping, genetic counseling.
Helen Bequaert (Becky) Holmes 24 Berkshire Terrace Amherst MA 01002 Phone: (413) 549-1925 Fax: (413) 549-1226 E-mail: fholmes@pltpath.umass.edu Ph.D. in Zoology (population genetics), University of Massachusetts; now Coordinator, Center for Genetics, Ethics and Women; Co-coordinator, international network, Feminist Approaches to Bioethics; co-editor, The Custom-Made Child? and Feminist Perspectives in Medical Ethics; editor, Issues in Reproductive Technology; articles on feminist technology assessment of sex selection, in vitro fertilization. Available for: ALL 10 CATEGORIES
Linda Janet Holmes 64 Cambridge Street East Orange NJ 07018 Phone: (201) 678-7674 Fax: (609) 292-3580 E-mail: M.P.A., Rutgers University; Research Scientist, New Jersey Department of Health; numerous publications, presentations on interviews with midwives; co-author of forthcoming book Listen To Me Good: Autobiography of an Alabama Midwife, Ohio State University Press, 1996; member, Black Women's Health Project; Co-chair, Reproductive Health Committee, National Women's Health Network. Available for: ALL 10 CATEGORIES
Betty B. Hoskins 5 Paradox Drive Worcester MA 01602 Phone: (508) 791-7434 Fax: (508) 797-4401 E-mail: bhoskins@mecn.mass.edu Ph.D. in Molecular Biology; now Associate Professor, Critical Studies/Sciences, Massachusetts College of Art; free-lance textbook editor; writings on feminist bioethics and DNA for middle school; developed Unitarian Universalist feminist theology; work on Safe Space and Right Relationships; on editorial boards of J. Medical Humanities and J. Science Education and Technology; a folkdancer. Available for: ALL 10 CATEGORIES
Donna M. Hughes Department of Applied Social Studies University of Bradford West Yorkshire BD7 1DP UK Phone: 44-1274-385690 Fax: E-mail: d.hughes@bradford.ac.uk Ph.D. in Genetics, Pennsylvania State University; now Lecturer, Women's Studies. University of Bradford, West Yorkshire, UK; lectures on women gender and science, integration of race and gender into introductory biology, feminist teaching of human genetics; research areas: development of the scientific method, feminist theory, women in science and engineering. Available for: ALL 10 CATEGORIES
Altheada Johnson 380 Adelphi St. Brooklyn NY 11238-1012 Phone: (718) 622-2457 Fax: (718) 622-2457 E-mail: altheada@pipeline.com M.S. in Clinical Nutrition, Hunter College, CUNY; Registered Dietitian in the NYC School Lunch Program and Nutritionist for the Women, Infants and Children (WIC) Program, also nutritionist in the Out Patient Department of Newark Beth Israel Medical Center; diagnosed with von Hippel-Lindau (VHL) disease in 1988; secretary, Board of Directors of the VHL Family Alliance, and Chairperson, New York Chapter; awarded the Hope Award for Family Volunteers in 1995; interested in preimplantation testing and IVF for VHL. Available for: ALL 10 CATEGORIES
J. Hoxi Jones-Carranza 9703 Willow Street Houston TX 77088 Phone: (713) 447-5806 Fax: (713) 767-2419 E-mail: j.jones.carranza@antares.dhs.state.tx.us B.A., Howard University; now Regional Director, Office on Volunteer Services, Texas Department of Human Services; member, Sickle Cell, Thalassemia and Other Hemoglobin Variants Committee of the Council of Regional Networks for Genetic Services; member, Texas Genetics Network and Alliance of Genetic Support Groups. Available for: ALL 10 CATEGORIES
Denise A. Karuth 54 Burncolt Road Northampton MA 01060 Phone: (413) 586-1852 Fax: (413) 586-1852 E-mail: dkaruth@k12.oit.umass.edu M.Ed. in Rehabilitation Counseling, Boston State College; Administrative Director, Boston Self Help Center, Brookline; Chair, Massachusetts Coalition of Citizens with Disabilities (MCCD); member, Statewide Independent Living Council; Chair, Governor's Commission on Accessible Transportation (1984-87); essay in Ordinary Moments: The Disabled Experience (Alan J. Brightman, ed.). Available for: ALL 10 CATEGORIES
Regina (Reggie) Kenen
176 Western Way
Princeton NJ 08540
Phone: (609) 924-8196
Fax: (609) 924-8178
E-mail: kenen@trenton.edu
Ph.D. in Sociology, Columbia University; M.P.H.
in Health Promotion, University of Sydney; now Professor
and Co-chair, Sociology, Trenton State College; research
on occupational health, genetic counseling and screening;
participant, Fulbright Colloquium on Life and Death Under
High Technology Medicine; author, Reproductive Hazards in
the Workplace: Mending Jobs, Managing Pregnancies.
Available for: A, B, C, E, F, H
Areas of expertise: Psychosocial implications of genetic counseling and genetic testing
See article in bibliographyRita Kerr 6587 Masefield St. Worthington, OH Phone: (614) 236-6365 Fax: (614) 236-6157 E-mail Ph.D. in nursing, The Ohio State University; certificate in family therapy from Georgetown University Family Center; now Professor of Nursing, Capital University, Columbus, Ohio; teach at both the graduate and undergraduate levels; areas of interest, teaching, and research include: family theory and research methods in nursing, human development, grief and mourning, death and dying, and women's health; member, Sigma Theta Tau, National Honor Society in Nursing. Available for: A, B, C, D, F, H
Karen K. Klyczek Biology Department, Univ. of Wisconsin-River Falls 410 S. Third St. River Falls WI 54022 Phone: (715) 425-3364 Fax: (715) 425-3785 E-mail: karen.k.klyczek@uwrf.edu Ph.D. in Biochemistry, University of Wisconsin-Madison; now Associate Professor of Biology, University of Wisconsin-River Falls; research in regulation of gene expression in tumor cells; Co-director of undergraduate Biotechnology Program; Director of NSF-sponsored biotechnology in-service program for high school teachers. Available for: ALL 10 CATEGORIES
Joy Kroeger-Mappes Dept. of Philosophy Frostburg State University Frostburg MD 21532-1099 Phone: (301) 687-4445 Fax: (301) 687-4495 E-mail: j_kroeger@fre.fsu.umd.edu B.S. in Nursing; Ph.D. in Philosophy, Georgetown University; now Associate Professor of Philosophy, Frostburg State University; articles on ethical dilemmas for nurses, ethic of care and ethic of rights. Available for: ALL 10 CATEGORIES
Ann Marie Liakos 1670 Green Oak Circle Lawrenceville GA 30243 Phone: (770) 995-9570 Fax: (770) 995-8982 E-mail: annliakos@aol.com B.A. in Economics/Sociology; Editor Hydrocephalus News & Notes; Executive Director, The Hydrocephalus Research Foundation and The National Hydrocephalus Foundation; studying developmental neurobiology at Georgia State University; mother of a son (Jeffrey) born with hydrocephalus, unknown etiology. Available for: ALL 10 CATEGORIES
Mary Mahowald 5650 S. Dorchester Ave #3 Chicago IL 60637 Phone: (312) 667-5971 (H)/702-9300 (W) Fax: (312) 702-0840 E-mail: mm46@midway.uchicago.edu Ph.D. in Philosophy; now Professor, Dept. Obstetrics & Gynecology and Assistant Director, Center for Clinical Medical Ethics, Univ. Chicago; author, Women and Children in Health Care: An Unequal Majority (Oxford); 1993-97 Breast Cancer Research Integration Panel, U.S. DOD; ELSI grants: 1992-97, The Human Genome Project and Women; 1995-97, Implications of the Geneticization of Health Care. Available for: ALL 10 CATEGORIES See articles in bibliography
Wendy L. McGoodwin Council for Responsible Genetics 5 Upland Road, Suite 3 Cambridge MA 02140 Phone: (617) 868-0870 Fax: (617) 491-5344 E-mail: gwatch@neu.edu B.A. in Anthropology and Women's Studies, Princeton University; Executive Director of the Council for Responsible Genetics (CRG), a national bioethics advocacy organization; publisher of GeneWATCH, the CRG's bulletin covering social implications of genetic technologies; appointed Consumer Advocate for the Genetic Testing Working Group of the National Association of Insurance Commissioners. Available for: ALL 10 CATEGORIES
Suzanne R. Morse College of the Atlantic 105 Eden Street Bar Harbor ME 04609 Phone: (207) 288-5015 Fax: (207) 288-4126 E-mail: srm@ecology.coa.edu Ph.D. in Botany, University of California, Berkeley; now Professor of Human Ecology, College of the Atlantic; research interests: stress physiology, ecology, and gender and science. Available for: ALL 10 CATEGORIES
Julien S. Murphy Philosophy Department University of Southern Maine 96 Falmouth Street, P.O. Box 9300 Portland ME 04101-9300 Phone: (207) 780-4141 Fax: (207) 780-4226 E-mail: jmurphy@maine.edu Ph.D. in Philosophy; Professor of Philosophy, University of Southern Maine, Portland; teaches medical ethics and feminist theory; research in ethical and political implications of medical research and technologies; book: The Constructed Body: AIDS, Reproductive Technology and Ethics, SUNY Press, 1995. Available for: ALL 10 CATEGORIES
Cheryl L. Ney Dept. of Chemistry Capital University Columbus OH 43209 Phone: (614) 236-6100 Fax: (614) 236-6518 E-mail: 71035.250@compuserve.com Ph.D. in Biochemistry, University of Chicago; now Associate Professor of Chemistry, Capital University, Columbus, Ohio, teaching organic and biological chemistry, chemistry for nurses, and "Science, Technology and Society"; NSF Distinguished Visiting Professor of Women and Science in the University of Wisconsin System for '94-'95. Available for: ALL 10 CATEGORIES
Laurie Nsiah-Jefferson 201 Pheasant Run Monmouth Junction, NJ 08852 Phone: (908) 329-0003 Fax: (609) 292-3580 E-mail: M.P.H., Yale; now Research Scientist, New Jersey Department of Health; publications include "Reproductive laws, women of color, and low-income women" in Reproductive Laws for the 1990s; "Reproductive genetic services for low-income women and women of color: Access and sociocultural issues" in Women and Prenatal Testing: Facing the Challenges of Genetic Technology. Available for: A, B, C, D, E, G, H Special Expertise: women of color, low-income women managed care, reproductive and women's health, prenatal care, substance abuse. See article in bibliography
Celia J. Orona SAGE Consultants in Applied Social Research 5642 Bergamo Court San Jose, CA 95118 Phone (office): (408) 978-3249 E-mail: torona@pacbell.net Ph.D. in Sociology, University of California at San Francisco; Professor Emerita, Sociology, San Jose State University; now consultant with SAGE Consultants; research in cultural pluralism and ethics, in cultural differences in caregiving for Alzheimer's disease, in DNA fingerprinting in the military. Available for A, B, F
Mary Z. (Mary Kay) Pelias Dept. of Biometry & Genetics L.S.U. Medical Ctr., 1901 Perdido Street New Orleans LA 70112 Phone: (504) 568-6151 Fax: (504) 568-8500 E-mail: mkzp@aol.com Ph.D. in Biology, Tulane University; J.D. Loyola University; Professor of Genetics, Louisiana State Univ. Medical Center in New Orleans; Founding Fellow ACMG; member, social issues committees of ASHG and ACMG; Co-chair of Ethics Committee, CORN; research in clinical genetics and in legal implications of the physician-patient relationship and informed consent in contemporary genetic counseling. Available for: A, B, C, G, H Special Expertise: Medicolegal Implications of the Human Genome Project, Genetic Privacy, and Nondiscrimination. Professional-patient/client Relationship in Medical Genetics.
June A. Peters Department of Human Genetics Graduate School of Public Health (GSPH) University of Pittsburgh 130 DeSoto, A-300 Crabtree Pittsburgh, PA 15261 Phone: (412) 624-3081 Fax: (412) 624-3020 E-mail: jpeters@helix.hgen.pitt.edu M.S. in Genetic Counseling, Rutgers; M.S. in Counseling Psychology, California State University/San Bernadino; Genetic Counselor and Cancer Risk Counselor; professional experience in academic, private, government organizations; papers on familial cancer risk counseling and genetic counseling; emphasize the need for strong educational and counseling support to prepare both public and professionals to make informed decisions about genetic testing. Available for: ALL 10 CATEGORIES
Tabitha M. Powledge Route 3, Box 549 Hollywood MD 20636 Phone: (301) 373-5466 Fax: (301) 373-3788 E-mail: tam@worldnet.att.net M.S. Human Genetics, Sarah Lawrence; journalist; former Director, Genetics Program, Hastings Center; founding editor, The Scientist; reviewer for Canadian Royal Commission on New Reproductive Technologies; articles on behavioral genetics, BioScience, 1993; author, Your Brain: How You Got It and How It Works (Scribner's) for ages 12 and up. Available for: ALL 10 CATEGORIES
Kathleen J. Prestwidge 162-01 77th Road Flushing NY 11366 Phone: (718) 591-9170 Fax: (718) 591-6762 E-mail: KJOY7HUESP@aol.com Ph.D. in Biology, St. John's University; now Professor Emerita, Department of Biology and Medical Laboratory Technology, Bronx Community College; interests in allied health education, science literacy, public access TV. Available for: E
Barbara A. Quinton 4701 Red Fox Road Rockville MD 20852 Phone: (202) 865-3022 Fax: (202) 865-3878 E-mail: M.D., Meharry Medical College; now Associate Professor of Pediatrics, and Director, Medical Genetics Clinic, Howard University School of Medicine; board certified in pediatrics and clinical genetics; research on sickle cell disease and ethnocultural perspectives on adolescent disability. Available for: ALL 10 CATEGORIES
Ruth Ricker 447 Park Drive #1D Boston MA 02215-3841 Phone: (617) 267-3537 Fax: (617) 267-0260 E-mail: rricker@shore.net B.S. in Business, Northeastern University; President, Little People of America, Inc. (dwarfs and others of short stature); member, New England Regional Genetics Group--Social & Ethical Concerns and Steering Committees-- and Society for Disability Studies; employed as Federal civil rights investigator. Available for: ALL 10 CATEGORIES
Sue V. Rosser Center/Women's Studies & Gender Research University of Florida 115 Anderson Hall, Box 115200 Gainesville FL 32611 Phone: (352) 392-3365 Fax: (352) 392-4873 E-mail: srosser@wst.ufl.edu Ph.D in Zoology, University of Wisconsin; now Director, Center for Research on Women's Studies and Gender, and Professor of Anthropology, University of Florida; consultant on integrating women into science curricula; author Female- Friendly Science, Feminism and Biology, Women's Health: Missing from US Medicine and Teaching the Majority. Available for: ALL 10 CATEGORIES
Barbara Katz Rothman Department of Sociology, C.U.N.Y. 17 Lexington Ave New York NY 10010 Phone: (212) 387-1709 Fax: (212) 387-1708 E-mail: Ph.D. in Sociology, New York University; now Professor of Sociology, Baruch College, City University of New York; author, Recreating Motherhood: Ideology and Technology in a Patriarchal Society, and The Tentative Pregnancy: Prenatal Diagnosis and the Future of Motherhood; Fulbright Scholar in The Netherlands, studying prenatal diagnosis by midwives, 1995. Available for: ALL 10 CATEGORIES See article in bibliography
Susan Sherwin Dept. of Philosophy Dalhousie University Halifax NS B3H 3J5 CANADA Phone: (902) 494-3393 Fax: (902) 494-3518 E-mail: ssherwin@is.dal.ca Ph.D. in Philosophy, Stanford University; now Professor of Philosophy and Women's Studies, Dalhousie University; member of Hastings Center Project on Feminism and Bioethics; co-editor of Moral Problems in Medicine; author of No Longer Patient: Feminist Ethics and Health Care; Principal Investigator, interdisciplinary Strategic Research Network Grant on feminist health care ethics, funded by the Social Science and Humanities Research Council of Canada (1993-96). Available for: ALL 10 CATEGORIES
Ann P. Walker Division of Human Genetics UCIMC, P.O. Box 14091 Orange CA 92613-1491 Phone: (714) 456-5789 Fax: (714) 456-5330 E-mail: awalker@uci.edu M.A. Social Ecology, UC Irvine; now Director of Genetic Counseling and Associate Professor, UC Irvine; formerly President, National Society of Genetic Counselors; board member, American Society of Human Genetics and American Board of Medical Genetics; currently President, American Board of Genetic Counseling; Vice President for Professionals, The Alliance of Genetic Support Groups. Available for: ALL 10 CATEGORIES
Dorothy Warburton Columbia Presbyterian Med Ctr, Genetics Lab Babies Hospital, Room BHS-B7 3959 Broadway, New York NY 10032 Phone: (212) 305-7143 Fax: (212) 305-7436 E-mail: cuh@cuccfa.ccc.columbia.edu Ph.D. in Genetics, McGill University; now Professor of Clinical Genetics and Development, Columbia University, New York; directs clinical cytogenetics lab performing prenatal and postnatal diagnosis; research concerns: chromosome abnormalities in miscarriage and congenital malformations, and gene mapping; participant in Columbia's human genome project to map chromosome 13. Available for: ALL 10 CATEGORIES
Piri L. Welcsh Health Science, Rm. K160, Box 357720 U. of Washington, Div. Med. Genetics 1959 Pacific Ave., NE Seattle WA 98195 Phone: (206) 616-4297 Fax: (206) 616-4295 E-mail: piri@u.washington.edu Ph.D. in Molecular Genetics, Ohio State University; Senior Fellow, Dept. Medical Genetics, Univ. Washington; Instructor, 1995, University of Texas SW Medical Center at Dallas; also recipient of a Susan G. Komen Breast Cancer Foundation Postdoctoral Fellowship Award 1992-1995; positive family history of breast cancer (mother diagnosed in 1993, maternal grandmother died in 1990); also an avid marathon runner. Available for: ALL 10 CATEGORIES
Dorothy C. Wertz
Box 95
Westport Point MA 02791-0095
Phone: (617) 642-0292
Fax: (617) 642-0238
E-mail: dwertz@mailer.shriver.org
Ph.D. in Sociology of Religion, Harvard; now Senior
Scientist, Social Science, Ethics, and Law, Shriver Center for
Mental Retardation; Adjunct Professor, Public Health, Boston
Univ.; research on international ethical decision-making by
medical geneticists and patients; co-author, Guidelines on
Ethical Issues in Medical Genetics and the Provision of
Genetic Services, WHO, 1995.
Available for: A, B, C, D, E, G, H, I
Areas of Expertise: International surveys, actual data on people's views of ethical issues. See article in bibliography
Mary T. White Assistant Professor Department of Community Health Wright State University School of Medicine P.O. Box 927 Dayton, OH 45401-0927 Phone: (937) 775-3313 Fax: (937) 775-2851 E-mail: mtwhite@nova.wright.edu Completed Ph.D. in Medical Humanities in 1995 at the University of Texas Medical Branch; dissertation, "Reconfiguring Autonomy: Genetic Counseling as a Socially Embedded Practice," examined the meaning of autonomy in genetic counseling; currently teaches Medical Ethics and Medical Humanities at Wright State University School of Medicine in Dayton, OH. Available for: ALL 10 CATEGORIES
Olivia Masih White Dept. Biological Science UNT Station, P.O. Box 5218 Denton TX 76203-5218 Phone: (817) 565-3594 Fax: (817) 565-3821 E-mail: white@cas.unt.edu Ph.D. in Human Genetics, Univ. North Texas; now Assistant Professor, Biological Sciences; Workshop Leader in ELSI/Human Genome Project for Clergy, Physicians and Teachers; member, United Church of Christ, Science and Technology Working Group; member, Ecumenical Round Table on Science, Technology, and the Church; Vice-president of TEXGENE Education Committee; member of TEXGENE Ethics Committee. Available for: ALL 10 CATEGORIES
Laurie Anne Whitt Humanities Dept. Michigan Tech. Univ. Houghton MI 49931 Phone: (906) 487-3250 Fax: (906) 523-6294 E-mail: lawhitt@mtu.edu Ph.D. in Philosophy, University of Western Ontario; now Associate Professor of Philosophy, Humanities Department, Michigan Technological University; research in History and Philosophy of Science, American Indian Studies, and Feminism. Available for: ALL 10 CATEGORIES
Susann L. Wilkinson 142 Orchard Street Somerville MA 02144 Phone: (617) 623-2583 Fax: (617) 432-2565 E-mail: swilkins@mit.edu MSW, MPH; research consultant, Dept. Social Medicine, Harvard Medical School, and Visiting Scholar, Program on Science, Technology and Society, MIT; interests in health care and medical technologies (genetics, women's health, and the policy implications of biomedical innovations); organized national conference on the social, ethical and technical implications of changes in molecular medicine and the human genome project, 1991. Available for: ALL 10 CATEGORIES
Laura R. Woliver Dept. of Government University of South Carolina Columbia SC 29208 Phone: (803) 777-3109 Fax: (803) 777-8255 E-mail: woliver@garnet.cla.sc.edu Ph.D. in Political Science, University of Wisconsin; now Associate Professor, Department of Government, Univ. South Carolina; research on social movements, women and politics; author of From Outrage to Action: The Politics of Grass Roots Dissent; member, editorial board, Women & Politics; articles, book chapters on the politics of new reproductive technologies. Available for: ALL 10 CATEGORIES